Category: pain

it really is the little things

Meme - Feeling Invisible

Today I am alive.

Everything hurts, my health is uncertain, and my mental health is in the toilet. This is the first time in the last decade I have failed to do the pad challenge.

For me it means I am being unreliable for the people who are depending on me, and I hate it. I have never been the one that needed expensive things…but today I needed a pick me up.

I needed to get out of the house.

I needed a dirty Chai tea. (this is a Chai tea with a shot of espresso)

I needed five minutes when no one was depending on me while I was wanting to fall apart.

That feels so selfish.

I can’t remember a time when I didn’t have responsibilities…expectations…obligations. And I have always been able to do it. I gave of myself until everyone else had. Now I have to put my self first. and it’s so strange.

Yesterday I couldn’t find the energy to do the work I needed to do. Now after I enjoyed the Chai I will be able to do some of it.

I am still struggling, and I won’t be able to even get answers about my health issues until February.

Illness has me

Meme-emotional description

This is the first time in a while I have struggled with the pad challenge. I am going to try to get it caught up…but I don’t know if I will be able to. I’m sick. Not the normal this time of year thing, though I wish it was. I just got over a nasty sinus infection, but I am still working on dealing with other issues that are making me feel like sleeping all the time.

I will get over it, I think…but I am not sure how long it will take. Until I get back to 100 % I am probably gonna be behind on everything. I am going to try to keep up…but I can’t promise anything right now.

life updates

I realize that I have been absent for a week….it was however not intentional. between Dr’s appointments and books releasing….I just brain fogged. Though I did have a nice surprise. went to the Dr because I have a sinus infection and the check in notes acknowledged that I have fibromyalgia and Autism. both of them previous doctors were not willing to diagnose me with. though other doctors had? I am sure that they are correct and having a dr agree just feels so good.

I should be doing the daily thing again through November but I don’t think I’ll be doing the normal week posts as I am doing 2 pad challenges and trying to do the Fae 50k.

Saturday thoughts

Meme - Feeling Invisible

I will be going back to the other sort of Saturday post hopefully next week. I am feeling rotten, and the world just seems awful lately. So I thought I would again share my thoughts. (I did not get Saturday Scheduled ahead so this is a last minute scramble for a post as well)

This has been a rough week. Lots of Doctor visits and medical tests. I fell twice. And I feel like I got nothing done. Perhaps that is why I am doing the switch on the post. I need to feel like there is more to me than just what I get done.

I know how to do so many things. I can do resin crafts, sewing, Plastic Canvas, Needlepoint, Digital art, Coding in C++, Calligraphy, Acrylic and Watercolor Painting, Candlemaking, Soapmaking, Play Piano, Book binding, Offset Printing, First Aid, Graphic/Cover Design, basic jewelry design, metal working, wood working, Bread baking, Basic cooking, writing stories & poetry, Editing, and so much more. Still there are days when I feel like I am useless.

Why? because I couldn’t do the mamogram on the right side because of pain. Because my hands curl due to arthritis. Because I get so dizzy I randomly lose my balance. Because I legitimately forget to eat. I struggle to remember to take the pharmacy I am supposed to take twice a day. (20 pills in the morning, 18 pills at night, and a shot once a week) I either stay awake 3-4 days at a time or I sleep 24 hours straight. and I never feel rested. So I feel useless a lot. Am I? nah, but that doesn’t mean that feeling is any less. I didn’t even mention that I taught myself how to publish. I have taught myself most of the skills I have. The only “Talent” I have (An ability that I did not need to practice or study) is writing poetry…and even that I have improved by simply practicing. So if, like me, you are feeling useless….stop and list all that you know how to do. I believe it will help you feel better about you.

Saturday thoughts

Meme - Feeling Invisible

I decided to change my post for today for a few reasons.

1 due to a scheduling snafu I lost my record of daily postings.

2 I want to say a few things about politics/ life/death/ shoes/ ships/sealing wax/cabbages/kings

3 I had a scheduling snafu for Friday through Sunday and am at 423 am trying to fix my blog.

4 I last slept Wednesday

There were two tragedies in public display in America this week.  The death of Charlie Kirk and a school shooting in Denver.

I found out when I said I felt….. And followed with my opinion I was automatically wrong according to everyone. My main opinion was that killing people is wrong. Even if the person who was killed was a garbage human.

I am not a fan of politics. I fully have a live and let live attitude. I believe communism is a great idea but human nature prevents it from working. I believe in individual freedom and Equality. I would love to see true world peace and weep at the impossible nature of it.

I am also a dreamer and creative soul.

I spend most days in pain because I worry about the ones I love so much I give myself headaches unintentionally.

I want to take care of everyone. Which is patiently impossible because not everyone has my heart and will take advantage of my kindness.

so, I am stopping and taking a breath.

Charlie Kirk was a human. He was killed for having an opinion.

Martin Luther King Jr was a human. He was killed for having an opinion.

Malcolm X was a human. He was killed for having an opinion.

I can continue this list but I don’t want to ruin my point.

..……….…

Regardless of what you thought about either tragedy both left families with someone to bury.

be considerate when you go online and cheer about another human dying. Live a life. Have opinions. But remember there but for the grace of God….

(And no that is not a religious statement. it is a thought process.)

My grandma phrased it better in my opinion.  She would often say “I cried for my lack of shoes until I met a man with no feet.”

Today I am grateful to be alive. What about you?

Inside my own head

Meme - Overthinking

I find myself introspective a lot more lately. I am going through my computer files and transferring stuff from my phone. I have been trying to clean up the duplicates and sort and organize it.

I am finding myself amazed by the sheer volume of files. They are pictures of my poetry and art I have made. I wish I could say that I see the progress in my art. It seems like I either draw or create art beautifully or like a brain dead kindergartener. There’s no middle line apparently.

I have been fighting a wound on my foot since October and now that it is healed I am allowed to do stuff. So I looked at the mess that my personal space has become because I was not allowed to be on my feet and I was so overwhelmed I didn’t know where to start.

I just sat down and went to pieces because I was too uncomfortable and overwhelmed to get anything done. I told my kid that. He kinda seems to be smarter than I am most of the time anymore, I swear. He just looks at me and says he is planning a yard sale. why not sort through the boxes beside the desk for stuff to toss to the sale? He literally just gave me a starting point. I did the boxes and I stopped there for the night. The next day I went through a corner that had been catching my craft supplies thinking it would be a small step forward and I have apparently done too much. My body doesn’t bother to tell me that I should slow down anymore …it just quits and I hurt for the next few days.

So I have been forced to go back to doing nothing. I hate that. So I am cleaning up my files and quietly trying to feel better about what I did get done instead of feeling like I failed because I pushed my self too much.

I need to find a way to stay out of my own head. it’s dark in there and sometimes it is terrifying to lose the light.

Don’t judge progress on word count alone

Today I only managed to do one poem and one art piece….at least on paper. I also scheduled a week of blogs for Fae corps publishing. I got 3 books adjusted on Ingram and one on Amazon. I squeezed in my daily routine for my games. I fixed most of an epub. I designed a new cover. I ate two meals (which is an accomplishment by itself). I helped my son with the sick chicken (she is getting better). I finished the editing from the betas for the story Serena is submitting to Killing Stroke. (Adding another 280 words there) Note how little of what I did is on the list of word counts?

    some days I don’t have the ability to do even the amount I have listed, some days I manage more. If I were to base my self esteem on my words count – well I would be miserable. I do more than I often think I do. I am willing to bet that you are too.

Becoming Fiction

Poetry

By Serena Mossgraves

I live in a world where biography's  
Indicate fictional characters 
Which apparently means there is naught 
That we in the real world could learn from them... 
 
History is become  
the darkness that clouds  
what lay ahead of us, 
Instead of shedding light 
on where we have been. 

And as I struggle 
                  to light the path 
for those around me 
Feeling as though  
                 this might just be a war  
I cannot win... 

I realize that even if I 
am becoming fiction... 
I still will never be the person 
that they want in the end....

I was watching a video of The North Omaha Cat Lady. Incredible creator. She was reacting to a comment claiming Anne Frank was a fictional character. Admittedly that inspired Serena’s Poem, and broke my heart. Anne Frank was an incredible young lady. There have been very few biographical books I have enjoyed over the course of time I have been a reader, and her diary was one. The other that stands out was the nine days queen…the story of Lady Jane Grey.

Please if all of the best historical people are to become fiction…then let us still learn from their example. Just because something is fiction does not stop the truth behind it. We can learn from history, from fiction and from each other if we just open our hearts and our minds.

Right now is a scary time to be alive, especially if you live anywhere in the USA. I really try not to be too political on here as I don’t feel like that is what most people come to my blog for. However, having said that…Sometimes it hurts to be self aware in a time of political turmoil and unrest.

Thursday Thoughts

Meme - emotional description

my desk is piled high and I am desperately trying trying to get caught up.

I am so far behind because of the flare that I am struggling to keep from sending my body back in to a meltdown state.

so I may not be able to meet deadlines. I am going to try. but I am not aiming to be down again.

Thursday Thoughts

Meme - Feeling Invisible

To be honest I did not know what to say this week.

How often can you complain about the same thing before even you start to see it as just whining? And that is often the thing with chronic illness…we end up feeling like we are whining. No one wants to hear that it hurts for the millionth time. We can’t do anything that remotely feels useful.

Sometimes I wonder if anyone is interested in the dribble I do have to say. Then I think about it and realize that it doesn’t matter. I still need to speak my truth. I still have to get up and fight every day. Giving up is not in the cards.

So, Though I really didn’t know what to say today…I wanted to at the very least say HI. I Exist!